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The federal government promised a Rare Disease Drug Strategy five years ago and announced $1.4 billion in drug funding last March. Today not a single patient has received a single penny from that...
The federal government promised a Rare Disease Drug Strategy five years ago and announced $1.4 billion in drug funding last March. Today, not a single patient has received a single penny from that...
NEW YORK, Sept. 21, 2023 /CNW/ - At a high-level meeting at the United Nations Headquarters today, UN member states gathered to accelerate progress towards achieving universal health coverage by 2030....
A significant investment of federal funding will boost health system capacity to deliver screening, diagnostics and rare disease medicines and to incentivize research into rare diseases, in...
New Rare Disease Day survey shows three million Canadians with a rare disease suffer years-long delay to diagnosis and access to specialists, leading to irreparable harm, disability, and early death...
As the world comes together to fight coronavirus, Canadians with life-threatening rare and common diseases are marching on Parliament Hill to ask for the same support in the Fight for Our Lives....
As the world comes together to fight coronavirus, Canadians with life-threatening rare and common diseases will march on Parliament Hill to ask for the same support in the 'Fight for Our Lives'...
Meeting with pricing officials shows that government's true goal is to slash prices so low that no new medicines will come to Canada OTTAWA, Dec. 10, 2019 /CNW/ - The changes to how the Patented...
TORONTO, Feb. 19, 2016 /CNW/ - On behalf of all patients with rare diseases and those with common conditions who rely on donated plasma as a source of life-saving and life-enhancing therapies, the...
- Despite advancements, improved access to orphan drugs still needed - TORONTO, Feb. 28, 2013 /CNW/ - Last night at the Canadian Organization for Rare Disorders (CORD) Rare Disease Day Awards Gala...
TORONTO, Oct. 3, 2012 /CNW Telbec/ - The Canadian Organization for Rare Disorders, on behalf of the 2.8 million Canadians with rare disorders, welcomes Health Minister Aglukkaq's announcement of the...
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