ImPACKD and The Kidney Foundation of Canada Join Forces to Help Launch
TORONTO, Aug. 17 /CNW/ - Before today, millions of Canadians living with
chronic kidney disease (CKD) did not have a strong online advocacy
presence. Improving Patient Advocacy in Chronic Kidney Disease (ImPACKD)
and The Kidney Foundation of Canada are now joining forces to provide an
effective resource. Together, they are launching href="www.impackd.ca">www.impackd.ca,
a microsite of href="www.kidney.ca">www.kidney.ca that is
specifically designed for Canadians affected by chronic kidney disease
"ImPACKD is dedicated to helping CKD patients and their families take an
active role in bringing about positive change by using their first-hand
knowledge of the daily challenges and frustrations caused by CKD,"
explains Carroll Thorowsky, an Executive member of ImPACKD and CKD
caregiver. "With the web platform support and charitable sector
expertise of The Kidney Foundation, we are providing a vehicle for the
CKD community affected by kidney disease to communicate with each other
as well as health care professionals and government. Our goal is to
improve access to the care and services we - as CKD patients and
caregivers - most need."
The Kidney Foundation of Canada supports ImPACKD's goal of empowering
CKD patients and their caregivers. "We are pleased to be collaborating
with ImPACKD to share resources, support and information that can help
improve the lives of people affected by kidney disease," says Paul Shay,
National Executive Director of The Kidney Foundation of Canada.
With a vast provincial disparity in the way CKD patients are treated,
cared for and monitored, ImPACKD first came together in November 2009
with the initial goal of advocating for equal access to optimal care for
Canadians affected by chronic kidney disease. Since that time, ImPACKD
has expanded its areas of focus to include proactive screening for
patients at risk of developing kidney disease and increased dietary
assistance for CKD patients through additional listings on nutritional
"There are issues surrounding kidney disease that are not currently
being actively addressed, but the development of ImPACKD.ca hosted on
The Kidney Foundation of Canada's website will provide the forum needed
by the CKD community to voice its concerns and raise the much needed
public awareness around these issues," says Marie-Eve Chainey, an
Executive member of ImPACKD, a CKD patient, and volunteer with The
Kidney Foundation's Peer Support Program.
ImPACKD encourages patients to take responsibility for their health by
learning about health risks, treatment options, the right questions to
ask and the importance of reporting any adverse events they experience.
To find out more about ImPACKD, please visit href="www.impackd.ca">www.impackd.ca
About Chronic Kidney Disease(1)
CKD is the presence of kidney damage or a decreased level of kidney
function for a period of three months or more. This disease affects an
estimated 2 million Canadians. Diabetes, high blood pressure, anaemia
and cardiovascular disease are the most common causes of CKD. The
disease is currently divided into five stages depending on the severity
of the damage to the kidneys.
Patients have more than 90 per cent kidney function
Treatment - Identify and try to reverse the cause of decreased
Patients have 60 to 89 per cent kidney function
Treatment - Try to stem the progression of the disease
Patients have 30 to 59 per cent kidney function
Treatment - Try to stem the progression of the disease
Patients have 15 to 29 per cent kidney function
Treatment - Explore dialysis and transplant options
Patients have less than 15 per cent kidney function
Treatment - Dialysis or transplant required to sustain life
Not all CKD patients progress through all five stages of the disease. In
patients with Stage IV kidney disease, death is a more common outcome
(45.7 per cent) than dialysis (19.9 per cent)(2). In other cases,
patients remain stable at Stage IV or benefit from a successful kidney
There is no cure for CKD, but it is possible to prevent or delay disease
progression(3) through early detection, access to therapeutic
intervention and lifestyle changes.
Improving Patient Advocacy in Chronic Kidney Disease (ImPACKD) is a
group of CKD patients, caregivers, specialists and professional
advocates committed to raising awareness of issues that greatly impact
persons affected by kidney disease.
ImPACKD's goal is to empower patients and caregivers to be informed of
all possible treatment alternatives, to have the right to access to all
treatment options and to have all information regarding risks and
benefits of these treatments fully explained to them(4). ImPACKD seeks
to bridge the gap between CKD patients, their caregivers, families,
doctors and key opinion leaders(4).
About The Kidney Foundation of Canada
The Kidney Foundation of Canada is the national volunteer organization
committed to reducing the burden of kidney disease through funding and
stimulating innovative research; providing education and support;
promoting access to high quality healthcare; and increasing public
awareness and commitment to advancing kidney health and organ donation.
Since its creation in 1964, The Kidney Foundation of Canada has
contributed millions of dollars to research, and to providing services
to individuals living with chronic kidney disease and related conditions.
(1) The Kidney Foundation
of Canada. "World Kidney Day raises awareness of screening, early
detection" cr="true" href="http://www.kidney.ca/Document.Doc?id=287">http://www.kidney.ca/Document.Doc?id=287
Keith et al. Arch Intern Med. 2004;164:659
(3) The Kidney Foundation
of Canada. "Kidney Disease - Am I at Risk?" http://www.kidney.ca/files/Kidney/a28640_Risk_Eng.pdf
(accessed on June 14, 2010).
(4) ImPACKD. "About us" cr="true" href="http://www.impackd.ca/aboutus">http://www.impackd.ca/aboutus
For further information: For further information:
about ImPACKD, or to arrange an interview with an ImPACKD
member, please contact
Prizsm Public Affairs, 289-553-2355
Alon Barmapov, firstname.lastname@example.org, 647-405-1352
Chelsea Philip, email@example.com, 647-969-9222