Sarcoma Cancer Foundation of Canada Launches The First Canadian National
Awareness Week To Educate Canadians About The Disease
TORONTO, June 17, 2013 /CNW/ - New research commissioned by the Sarcoma
Cancer Foundation of Canada confirms that sarcoma is the "forgotten
cancer," with only one third of Canadians knowing what the disease is
and a quarter saying they've never heard of it. Further, only 17 per
cent of Canadians correctly identified sarcoma as the disease that
claimed the life of Canadian icon Terry Fox.
The Sarcoma Cancer Foundation of Canada -- Canada's national voice for
sarcoma cancers -- is marking the third week in June as Sarcoma Cancer
Awareness Week in an effort to bring some much needed attention to the
"Sarcoma is a cancer that attacks the connective tissues within the
body, causing tumours in both adults and children," says Diana Arajs,
who founded SCFC after her mother, Vera Arajs, lost her life to the
disease. "These results validate a significant education-gap for a
disease that continues to have a serious impact on Canadians."
The survey, conducted by Leger Marketing, found that 25 per cent never
heard of sarcoma cancer and only slightly more than one-third could
correctly identify the disease. Almost 60 per cent of Canadians said
they could not name the type of cancer that claimed the life of the
celebrated cancer champion Terry Fox, and only 17 per cent correctly
identified it as sarcoma cancer.
Sarcomas can be found anywhere in the body and do not target one
particular area - this means that a person can be diagnosed in an
extremity (arms or legs), internally, and even the chest and back.
Some sarcomas present in the stomach and small intestine and are
referred to as gastrointestinal stromal tumours (GISTs). Diagnosis can
be a challenge when dealing with sarcomas, for example in early stage
GISTs, there are typically no symptoms present and they only arise when
the tumour has grown large enough to cause problems. Progress
continues to be made in terms of research and new treatments for these
aggressive sarcomas that will offer Canadian patients new hope in
managing the disease.
SCFC was founded in 2010 and has been active in fundraising to support
leading research aimed at treating and eventually eliminating sarcoma
cancer. Medical oncologist Dr. Albiruni Razak of Mount Sinai Hospital
and Princess Margaret Hospital in Toronto has been conducting research
in the area of sarcomas and was the recipient of the inaugural SCFC
"Sarcoma cancer has been a neglected area of research, but the tide is
turning and with the support of SCFC, we are moving forward with
exciting research here in Canada which leverages recent advancements
and discoveries around the world," said Dr. Razak.
In March 2013, SCFC renewed its support for Dr. Razak's work by
providing funding for his clinical trial of a new targeted treatment
for sarcoma cancer. The new daily treatment, taken orally, prevents
blood vessels from "feeding" the tumour and inhibits cancer cell
division and stunts the tumour's growth.
The Foundation will also be launching an online community resource later
this summer, aimed at allowing people experiencing sarcoma cancer to
share information and support. In June, SCFC hosted its first annual
Sarcoma Cancer Research Dinner to showcase important developments in
sarcoma cancer and to raise money to support that research.
For more information about the Sarcoma Cancer Foundation of Canada and
the disease, please visit, www.sarcomacancer.ca.
About the Sarcoma Cancer Foundation of Canada
The SCFC was founded in 2010 in memory of Vera Arajs and other Canadians
who have lost their lives to Sarcoma cancers. We are a volunteer-run
national organization supporting patients and their families, while
working with Canada's leading researchers in their efforts to eradicate
It is our mission to connect patients and their families with the best
medical information and community resources, to ease the process of
dealing with a sarcoma cancer diagnosis and treatment.
A survey of 1500 Canadians was completed online between June 3 and June
5, 2013 using Leger Marketing's online panel, LegerWeb. A probability sample of the same size would yield a margin of error of
+/- 2.5%, 19 times out of 20.
SOURCE: Sarcoma Cancer Foundation of Canada
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