Video: Lynda is a CTEPH patient who was diagnosed in 2011. This is her CTEPH story.
Video: Dianne is a CTEPH patient who was diagnosed in 2013. This is her CTEPH story.
Dr. Sanjay Mehta is a CTEPH-treating doctor.
New Social Media Campaign Promotes Awareness of Frequently Misdiagnosed
Form of Lung Disease
VANCOUVER, May 5, 2014 /CNW/ - Today, the Pulmonary Hypertension
Association of Canada (PHA Canada) is proud to announce a new social media awareness campaign targeting
all Canadians. The goal is to bring about greater awareness of the
devastating illness, pulmonary hypertension (PH), in order to promote
While many Canadians know about asthma, diabetes, and cardiovascular
disease, few Canadians are aware of pulmonary hypertension (PH), a
life-threatening condition that literally takes a person's breath
away. Even fewer know about chronic thromboembolic pulmonary
hypertension (CTEPH), one type of PH.1
"Patients with PH and CTEPH most commonly suffer from progressive
shortness of breath or dyspnea, which can become disabling. Because
dyspnea can also be due to many other less severe diseases of the heart
and lungs as well as being unfit, there is often a 2-3 year delay in
the diagnosis of PH," says Dr. Sanjay Mehta, Professor of Medicine and
Director Southwest Ontario PH Clinic in London, Ontario and Chair,
Board of Directors, PHA Canada. "This is a serious issue in the care of
PH patients, as early diagnosis of PH can mean the difference between
life and death. It is PHA Canada's priority to increase awareness of PH
and especially CTEPH, in order to promote earlier diagnosis and
excellent medical care of PH patients, leading to a better quality of
life and longer survival."
Key cornerstones of the campaign include new CTEPH-focused pages on the PHA Canada website and a unique Twitter handle, @CTEPHAware dedicated specifically to CTEPH. The goal is to bring CTEPH to life
through these educational platforms using 'real-life' story telling
through video vignettes and shorter 6-second video clips (Vine).
"If a picture is worth a thousand words, we're hoping compelling video
vignettes will take our message to new heights," says Angie Knott,
National Manager, PHA Canada. "Our goal is to educate Canadians about
CTEPH in a way that really helps them understand and learn. We are
thrilled to offer new platforms of support and education to the PH
community, including people at risk of developing PH and CTEPH and
This announcement comes on World PH Day -- a widely adopted global
awareness day reinforcing the need for increased awareness and
knowledge of all forms of pulmonary hypertension to facilitate early
Visit www.phacanada.ca/CTEPH and follow @CTEPHAware to learn more about this breathtaking disease and engage in discussions
of hope, support and information sharing.
About PH & CTEPH
Pulmonary Hypertension (PH) is a progressive life-threatening condition
characterized by high blood pressure in the arteries of the lungs.2 It is estimated around 5,000 Canadians have been diagnosed with PH, but as many as 10,000 may be affected by
Of those diagnosed with PH, a small subgroup will be diagnosed with
chronic thromboembolic pulmonary hypertension (CTEPH). CTEPH can
potentially be corrected by surgery.1
About PHA Canada
The Pulmonary Hypertension Association of Canada (PHA Canada) is a
national, registered charity. Our mission is to empower the Canadian
pulmonary hypertension community through awareness, advocacy,
education, research and patient support. PHA Canada is working to end
the invisibility and isolation often experienced by those living with
this life-changing disease. To learn more about PHA Canada and
pulmonary hypertension, please visit www.PHACanada.ca
This educational campaign is supported in partnership with Bayer Inc.
1 Mehta, S et al Diagnostic evaluation and management of chronic
thromboembolic pulmonary hypertension: A clinical practice guideline.
Can Respir J 2010; 17(6):301-334.
2 PHA Canada website, What is PH? http://www.phacanada.ca/en/education/ Last accessed February 6, 2014.
3 PHA Canada website, What is PH? http://www.phacanada.ca/en/education/ Last accessed February 5, 2014.
Video with caption: "Video: Lynda is a CTEPH patient who was diagnosed in 2011. This is her
CTEPH story.". Video available at: https://www.youtube.com/watch?v=CE1LcsXi1hE
Video with caption: "Video: Dianne is a CTEPH patient who was diagnosed in 2013. This is her
CTEPH story.". Video available at: https://www.youtube.com/watch?v=tsK3U2caj40
Video with caption: "Dr. Sanjay Mehta is a CTEPH-treating doctor.". Video available at: https://www.youtube.com/watch?v=TgVlfXXpjTo
SOURCE: Pulmonary Hypertension Association of Canada
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