/R E P E A T -- Canadians with idiopathic pulmonary fibrosis participate in "six-minute marathon" to raise awareness of rare, but fatal lung disease(1)/

Participants encourage others with the disease to learn more and stay active longer

CALGARY, June 8, 2016 /CNW/ - While many Canadians are lacing up their running shoes this summer to participate in local walks, runs and marathons, people living with idiopathic pulmonary fibrosis (IPF) will face a different reality. Pulmonary fibrosis causes irreversible and worsening scarring of the lungs which deprives the body of oxygen2, eventually making everyday tasks impossible. For people with IPF, something as simple as a six-minute walk can feel like a marathon.

This month, Canadians living with IPF across the country are stepping up to the cause and participating in a "six-minute marathon" to raise awareness of this rare, but fatal lung disease.1 Respirologists sometimes use a six-minute walking test to help assess IPF, as well as to monitor how the disease is progressing over time.3,4

Calgarian, Fred Potter, has been living with IPF for almost 6 years and knows first-hand the impact this disease has on quality of life. Over the years, Fred has learned the importance of managing the disease – working closely with his doctor on a treatment plan and keeping fit by walking and gardening has helped him maintain lung function and stay active.5,6 To help raise awareness of IPF, the symptoms and the importance of treatment options, Fred will be participating this Saturday in the MEC Calgary Race Four in Edworthy Park, and is hoping the community will come out to learn more!

WHAT:          

IPF awareness – Six-minute marathon. Interview/photo opportunity with local resident and doctor



WHEN:          

Saturday, June 11 at 9 a.m.



WHO:             

Fred Potter and Dr. Charlene Fell



WHERE:       

Edworthy Park, 4111 Montgomery Dr NW, Calgary, AB

About IPF

Pulmonary fibrosis (PF) affects an estimated 30,000 Canadians and is responsible for 5,000 deaths each year. IPF is the most common form of PF.2 Every year, 6,000 people are diagnosed with PF and this number is expected to increase as the population ages.7 There is no known cause of IPF2, and by the time symptoms appear, the lungs have already been damaged.8 As the disease progresses, everyday tasks such as climbing stairs or getting dressed can become difficult, and eventually, oxygen therapy will be needed.8 Typical symptoms include: shortness of breath; a dry, hacking cough; loss of appetite; rapid weight loss; extreme tiredness and loss of energy; chest discomfort; coldness in the hands and feet; and memory loss.8 Early diagnosis and treatment can help slow progression of the disease.5,6

1 Costabel, Ulrich. The changing treatment landscape in idiopathic pulmonary fibrosis. European Respiratory Review. 2015;24:65-68.
2 Canadian Pulmonary Fibrosis Foundation. Idiopathic Pulmonary Fibrosis Patient Information Guide. What is Pulmonary Fibrosis? Accessed April 19, 2016. Available at:
http://cpff.ca/wp-content/uploads/2015/05/IPF_Guide_2012_Final_V1.1_2015MAY01.pdf
3 Du Bois, Roland M, et al. 6-minute walk distance is an independent predictor of mortality in patients with idiopathic pulmonary fibrosis. European Respiratory Journal. 2014;43:1421-1429.
4 Du Bois, Roland M, et al. Six-minute-walk test in idiopathic pulmonary fibrosis. American Journal of Respiratory and Critical Care Medicine. 2011; 183:1231-1237.
5 Canadian Lung Association. Idiopathic Pulmonary Fibrosis – Treatment. Accessed on April 19, 2016. Available at http://www.lung.ca/lung-health/lung-disease/idiopathic-pulmonary-fibrosis/treatment.
6 Canadian Pulmonary Fibrosis Foundation. Idiopathic Pulmonary Fibrosis Patient Information Guide. What You Can Do. Accessed April 19, 2016. Available at:
http://cpff.ca/wp-content/uploads/2015/05/IPF_Guide_2012_Final_V1.1_2015MAY01.pdf.
7 Canadian Pulmonary Fibrosis Foundation. Idiopathic Pulmonary Fibrosis Patient Information Guide. How Many People Have It? Accessed April 19, 2016. Available at:
http://cpff.ca/wp-content/uploads/2015/05/IPF_Guide_2012_Final_V1.1_2015MAY01.pdf.
8 Canadian Pulmonary Fibrosis Foundation. Idiopathic Pulmonary Fibrosis Patient Information Guide. What Are The Symptoms? Accessed April 19, 2016. Available at:
http://cpff.ca/wp-content/uploads/2015/05/IPF_Guide_2012_Final_V1.1_2015MAY01.pdf.

SOURCE Roche Canada

For further information: For more information or to arrange an interview, please contact: Lisa Cancian, Weber Shandwick, Tel: 416-894-2947, E-mail: lcancian@webershandwick.com


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