MEDIA ALERT: Canadian Organization for Rare Disorders urges Ontario to implement Canada's first Rare Disease Strategy

TORONTO, Feb. 27, 2017 /CNW/ - On International Rare Disease Day, patient representatives from the Canadian Organization for Rare Disorders (CORD) will meet with John Fraser, Parliamentary Assistant to the Minister of Health and Long-Term Care and other MPPs to share their experiences of living with rare disorders. 

CORD will also encourage Ontario to become the first Canadian jurisdiction to implement a Rare Disease Strategy, following Ontario's announcement of a Rare Disease Working Group at last year's Rare Disease Day event. Concrete actions are needed to address gaps between patient needs and available resources for diagnosis, care and treatment.

WHAT:                

Urging Ontario to take bold steps to implement Canada's first Rare Disease Strategy.



WHEN:                

Tuesday, FEBRUARY 28, 2017


8:30am



WHERE:              

Queen's Park, 111 Wellesley St W, Toronto


"In Camera" Legislative Dining Room, Side Bar Room



WHO:                  

Dr. Durhane Wong-Rieger, President and CEO of the Canadian Organization for Rare Disorders (CORD)


Dr. John Wallenburg, Chief Scientific Officer, Cystic Fibrosis Canada


John Fraser, Parliamentary Assistant to the Minister of Health and Long-Term Care


Michael Harris, Critic for Research, Innovation & Science, Progressive Conservative Party of Ontario

 

SOURCE Canadian Organization for Rare Disorders

For further information: Durhane Wong-Rieger, Canadian Organization for Rare Disorders, (647) 801-5176, durhane@sympatico.ca

Organization Profile

Canadian Organization for Rare Disorders

More on this organization


Custom Packages

Browse our custom packages or build your own to meet your unique communications needs.

Start today.

CNW Membership

Fill out a CNW membership form or contact us at 1 (877) 269-7890

Learn about CNW services

Request more information about CNW products and services or call us at 1 (877) 269-7890