TORONTO, Jan. 31, 2013 /CNW/ - It has been reported that Jim Flaherty,
Finance Minister and MP for Whitby-Oshawa has been diagnosed with
bullous pemphigoid. Pemphigoid is a rare blistering skin disorder that
can produce lesions primarily in the arms, thighs and mid- section. It
is very serious and requires treatment, generally with the extended use
of significant dosages of the steroid medication, prednisone, which
itself has significant long term side-effects.
The autoimmune diseases of pemphigoid and pemphigus are so rare that
there are no Canadian statistics available that show how many people
are living with these diseases or that measure the diagnostic period
between presentation and diagnosis. Incorrect diagnoses and prolonged
periods of suffering during the diagnostic process are all too common
in the case of rare skin disorders such as pemphigoid and pemphigus.
From media reports, it appears that Mr. Flaherty's period of illness
before diagnosis and treatment was substantial.
European data indicates that the incidence rate of bullous pemphigoid -
the variant that the Globe and Mail has reported in the case of Mr.
Flaherty - can range from seven cases per million per year to 43
million per year, depending on the country.
In 2008 patients and family members of patients with pemphigoid and
pemphigus established the Canadian Pemphigus and Pemphigoid Foundation
(CPPF), a non-profit, charitable organization registered with Revenue
Canada. The CPPF is committed to helping Canadians with these
auto-immune illnesses achieve a better quality of life and to educate
patients, caregivers and healthcare professionals.. The Foundation
operates across Canada and patient groups meet regularly to provide
support, share experiences and confer with health care professionals in
a supportive and safe environment.
SOURCE: Canadian Pemphigus and Pemphigoid Foundation
For further information:
For more information on the Canadian Pemphigus and Pemphigoid Foundation or to learn more about the disease, please see the Foundation's website at: www.pemphigus.ca and/or contact the Foundation Chair, Dan Goodwill at email@example.com or the Foundation's Executive Director, Cindy Anthony at firstname.lastname@example.org or 647-382-9356.