"Raise Your Voice" for CF Newborn Screening in Canada
PSA Campaign Launched Today Features Celebrity Patron, Céline Dion
TORONTO, May 1, 2013 /CNW/ - Cystic Fibrosis Canada launched a Public
Service Announcement (PSA) campaign today on the first day of May,
Cystic Fibrosis Awareness Month, in Newfoundland & Labrador and Quebec
urging families to call on their provincial legislators to commit to
newborn screening for cystic fibrosis.
Early diagnosis of cystic fibrosis through newborn screening provides
identified children with a better start in life. Without CF newborn
screening, irreversible lung damage, impediments to physical growth,
and digestive problems may have already occurred when the child is
finally diagnosed. To slow progression of the disease, early
intervention is critical.
"Canada is now the only country in the western world where newborn
screening for cystic fibrosis is not a universal standard of care,"
said Maureen Adamson, President and CEO of Cystic Fibrosis Canada. "We
urge families to call on provincial legislators in Quebec and
Newfoundland & Labrador to implement CF newborn screening and give
babies born with this devastating disease a chance to live longer,
The PSA campaign in Newfoundland & Labrador features Cystic Fibrosis
Canada's Celebrity Patron, Céline Dion, who urges families to call on
provincial legislators to implement newborn screening for cystic
fibrosis. In Quebec, a print PSA campaign featuring a link to a
petition will start this week.
Cystic Fibrosis Canada urges families in these provinces to send a
letter or email to their legislators, and to sign online petitions to
show their support. To sign the petitions in Newfoundland & Labrador
and Quebec, visit www.cysticfibrosis.ca.
Newborn screening for cystic fibrosis is now the standard of care in all
50 States in the U.S., Australia, New Zealand, the U.K. and much of the
European Union. Currently, British Columbia, Alberta, Saskatchewan,
Manitoba and Ontario screen newborns for cystic fibrosis. The Nova
Scotia government recently announced plans to adopt CF newborn
screening, yet Newfoundland & Labrador, Quebec, New Brunswick, and
Prince Edward Island still do not screen for this disease.
Cystic fibrosis is the most common fatal genetic disease affecting
Canadian children and young adults. It is a multi-system disease that
affects mainly the lungs and the digestive system. In the lungs, where
the effects are most devastating, a build-up of thick mucus causes
severe respiratory problems. Mucus and protein also build up in the
digestive tract, making it difficult to digest and absorb nutrients
from food. As improved therapies have helped to address the
malnutrition issues, ultimately most deaths related to cystic fibrosis
are due to lung disease. There is no cure.
Cystic Fibrosis Canada
Cystic Fibrosis Canada is one of the world's top three charitable
organizations committed to finding a cure for cystic fibrosis and is an
internationally-recognized leader in funding CF research, innovation,
and clinical care. We invest more funding in life-saving CF research
and care than any other non-governmental agency in Canada. Since 1960,
Cystic Fibrosis Canada has invested almost $150 million in leading
research, care and advocacy, resulting in one of the world's highest
survival rates for Canadians living with cystic fibrosis. For more
information, please visit www.cysticfibrosis.ca.
NOTE TO MEDIA: To download Céline Dion's message about the importance of CF newborn
screening in broadcast-ready quality audio, video and digital PSAs in
English, please visit: http://www.vvcnetwork.ca/cf/20120501/.
SOURCE: Cystic Fibrosis Canada
For further information:
National Media Contact:
Melinda McInnes, Communications Director
Cystic Fibrosis Canada
Tel: 416-485-9149 ext. 240
Toll free: 1-800-378-2233 ext. 240