Media Advisory - Newsmaker Breakfast: The CDR and Rare Diseases

    OTTAWA, April 23 /CNW/ - Durhane Wong-Rieger, President of the Canadian
Organization for Rare Disorders (CORD), will challenge the Canadian government
to respond to charges made by patients and families with rare disorders that
they are being unjustly denied potentially life-saving medicines. They feel
that our national drug review agency - the Common Drug Review (CDR) - is
applying an inappropriate, inadequate and unethical health economic assessment
to orphan drugs, resulting in the denial of nearly every orphan drug presented
to the CDR.
    The Standing Committee on Health is evaluating the CDR and will hear
testimony on April 25th from the Federal, Provincial and Territorial
governments that fund and operate the CDR. "We felt it was essential that
Committee members have in mind the concerns of the patients as they listen to
the government managers of CDR," says Wong-Rieger.

              Hosted by Durhane Wong-Rieger, President of CORD
              Ms. Wong-Rieger will discuss the shortcomings of CDR assessment
              of drugs for rare disorders and the need for an alternative
              solution. The issues will be exemplified by Tony Clark, a
              patient diagnosed with Renal Cell Carcinoma - a rare and
              terminal disorder - who will share his story.

    WHEN:     April 24, 2007
              7:30 - 8:00am - media registration
              8:00am - breakfast is served
              8:15 - 8:45am - keynote address
              8:45am - Q&A and interview opportunities

    WHERE:    The National Press Club of Canada
              150 Wellington, Ottawa, ON KIP 5A4
              South Entrance: 165 rue Sparks Street

    WHO:      Durhane Wong-Rieger, President of CORD
              Tony Clark, Kidney cancer patient
              Deborah Maskens, cancer patient

              - One-on-one interviews with participants
              - B-roll will be made available

    RSVP:     Please confirm attendance with the National Press Club at
              613-233-5641 or with Steven Lott (contact information below).

For further information:

For further information: Steven Lott, Communications Director, Ward
Health Strategies, (905) 577-6200 ext. 424, (905) 928-5688 (cell),

Organization Profile

Canadian Organization for Rare Disorders

More on this organization

Custom Packages

Browse our custom packages or build your own to meet your unique communications needs.

Start today.

CNW Membership

Fill out a CNW membership form or contact us at 1 (877) 269-7890

Learn about CNW services

Request more information about CNW products and services or call us at 1 (877) 269-7890