Media Advisory - Coalition to Save Our Young Adults

    All Grown Up and No Where to Go

    TORONTO, May 22 /CNW/ - The Coalition to Save Our Young Adults is holding
a press conference to call for action to deal with the critical lack of space
in the Thalassemia and Sickle Cell Clinic at Toronto General Hospital. The
program has no permanent assigned physician and has been limited to 99 adults
for the past 10 years.
    As a result, approximately 150 young adults with inherited anemias
receive transfusions at the Hospital for Sick Children but no adult services.
These are severe, complex diseases that require continuous monitoring and
treatment. As a result of the shortage of resources at Toronto General
Hospital, there have been 15 deaths in the past several years, many of which
were preventable.
    In 2004, the province promised to take action to assure quality care for
young adults with thalassemia and sickle cell disease but nothing has changed.
In the words of one physician, the situation has gone from "crisis" to "near
catastrophe". The hospital, the LHINs, and the province all have a
responsibility to these young adults who have been successfully treated at
Sick Kids and now are all grown up with no place to go.

    What:   Press conference

    When:   Monday, May 25, 2009 at 10:00 a.m.

    Where:  The Media Studio in the Main Legislative Building at Queen's Park

For further information:

For further information: Angela Covato, Anemia Institute for Research &
Education, Cell: (416) 994-0077, Office: (416) 969-7431

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