First time opportunity for CML patients to speak out - CML Society calls on patients to participate in survey to help improve care, quality of life



    MONTREAL, March 3 /CNW Telbec/ - The Chronic Myelogenous Leukemia (CML)
Society of Canada, a not-for-profit patient education and support
organization, today released a call to action for all patients with CML to
take part in their ground-breaking patient survey. This is the first survey in
the CML community that has been created by a patient group dedicated to CML
and the results are expected to have wide-reaching impact in terms of disease
management, education and advocacy.
    The CML Society survey entitled, CML Patients Speak Out, has been
developed to obtain key information from patients who are living with this
rare but often life-threatening form of leukemia. CML affects about
3 000 Canadian, with close to 460 new diagnoses per year. With the advent of
new, targeted cancer treatments, many patients are living longer, healthier
lives but they have not had the opportunity to tell their stories or know
about the experience of others with CML.
    All CML patients across the country are invited to participate in this
online survey by simply accessing the CML Society website: www.cmlsociety.org
    The survey represents a unique opportunity for the creation of a united
CML patient voice. Information on diagnosis, access to information and
education, and treatment challenges and successes will be collected. The data
will then be analyzed into a report and made available to physicians, patients
groups and patients. The survey results will serve as a resource from which
tailored services for patients can be developed - such as improved educational
resources to help patients know what their treatment options are and how to
best manage their disease over time.
    Cheryl-Anne Simoneau, President and CEO of the CML Society of Canada, was
diagnosed with CML six years ago at the age of 43 and she, like many other
people with CML, has experienced many treatment changes and challenges. She
believes that hearing first-hand from patients through a survey is a crucial
step forward to providing patients with what they need to achieve the best
possible quality of life.
    "The survey is a tool which unites the CML community in Canada. We all
want to see and refer to the survey results. We want everyone who has CML to
participate - the more participation we have, the more information we will
have, and the more meaningful the survey will be in order to really understand
the needs that exist for people with CML. And from there we can really look at
addressing those needs."

    About the CML (Chronic Myelogenous Leukemia) Society of Canada

    Established in 2006, the CML (Chronic Myelogenous Leukemia) Society
provides support, education and information on CML, current and emerging
treatments and research initiatives for people living with CML and their
families. Through these efforts and ongoing advocacy, the CML Society advances
its mission to help reduce suffering and improve care and the quality of life
of CML patients. For more information, please refer to www.cmlsociety.org




For further information:

For further information: Muriel Haraoui, HKDP Communications and public
affairs, (514) 395-0375 ext. 235, Mobile: (514) 717-3764, mharaoui@hkdp.qc.ca;
Cheryl-Anne Simoneau, President and CEO, CML Society of Canada, (514)
932-7575, cheryl.simoneau@cmlsociety.org

Organization Profile

CML (CHRONIC MYELOGENOUS LEUKEMIA) SOCIETY OF CANADA

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