Global experts on little-known but potentially devastating disease to
speak in Toronto at TSC Canada Conference
TORONTO, April 18 /CNW/ - Some of the world's foremost experts on
Tuberous Sclerosis Complex (TSC) will appear at Toronto's Chestnut Conference
Centre on April 21 to discuss the current state of diagnosis and treatment of
this little-known but potentially devastating disease.
WHEN: Saturday, April 21, 2007
8:30 a.m. to 5 p.m.
WHERE: University of Toronto Chestnut Residence, 89 Chestnut Street,
WHY: Speakers from Canada, the United Kingdom and the United States, in
fields ranging from neurosurgery and dermatology to psychiatry, are confirmed
to appear at the conference, hosted by TSC Canada. The breadth of topics
reflects the multiple effects of TSC, a genetic disease that can cause
abnormal lesions and tumours in the central nervous system as well as the
skin, kidneys, lung, heart and eyes.
Symptoms - seizures, infantile spasms, developmental delay, renal
complications and autism, among others - can range from severe and
life-threatening to mild. Because of the diversity of symptoms and the
variation in their severity, TSC is often mis- or undiagnosed. About 1 in
6,000 people are believed to have Tuberous Sclerosis Complex.
There is no cure.
Speakers at this year's TSC Canada National Conference are:
- Dr. Howard Weiner, Neurosurgeon, NYU Medical Centre, on Surgical
Treatment of Epilepsy
- Dr. Pamela Cooper, Pediatric Neurologist, Toronto, on Seizure Types
- Dr. Peter Crino, Adult Neurologist/Epileptologist, University of
Pennsylvania, on Adult Diagnosis and Management of TSC
- Dr. Petrus de Vries, Child and Adolescent Psychiatry, University of
Cambridge, UK, on Autism Spectrum Disorders in TSC
- Dr. Mark Mausner, Plastic Surgeon, Rockville, MD, on Skin
Manifestations and Treatment Options in TSC
- Dr. John C. Hulbert, Urologist, University of Wisconsin, on
Urological Issues and Treatment Options
- Vicky Whittemore, PhD, Vice-President and Director of Science,
Tuberous Sclerosis Alliance, Rockville, MD, on the Genetics of TSX
and the State of Research.
About TSC Canada
TSC Canada is a wholly volunteer-run nonprofit organization. Its mission
is to provide encouragement and support to individuals diagnosed with Tuberous
Sclerosis Complex and their families, to raise public awareness and educate
our communities about TSC, and to promote and support research aimed at
controlling the symptoms of TSC and finding a cure. On the web:
For further information:
For further information: TSC Canada, 1-800-347-0252