Uncovering the myth of Chest Wall Deformities - Shriners Hospitals for Children® - Canada Montreal & Montreal Children's Hospital Open Joint Clinic

 

To view the Social Media Release, click here: http://smr.newswire.ca/en/shriners-hospitals-for-children/chest-wall-deformities

MONTREAL, Sept. 26, 2011 /CNW Telbec/ - Shriners Hospitals for Children® - Canada and The Montreal Children's Hospital (MCH) of the McGill University Health Centre (MUHC) have established a unique, joint national clinic to evaluate and treat children with congenital chest wall deformities. Affecting as many as one child in a thousand, the disorder is often misdiagnosed or underdiagnosed in toddlers. However, symptoms and the atypical appearance of the chest may appear only as bone growth accelerates in puberty, with resulting health issues as well as problems related to body image and emotional and social withdrawal.

The two most common types of the disorder, pectus excavatum (a caved-in sternum or funnel chest) and pectus carinatum (a protrusion of the chest wall or pigeon chest) result when the ribs and sternum develop in an unusual manner. Mild deformities often are not discovered by physicians unless children are referred for coincidental scoliosis. If not treated adequately, patients may experience shortness of breath, low endurance and frequent respiratory difficulties. More severe chest deformities, may lead to thoracic insufficiency syndrome, which have significant impact of infants ability to grow and to develop normally. At the end of the spectrum one may find an extremely rare condition known as asphyxiating thoracic dystrophy (Jeune Syndrome).  These infants chest wall are so small that they cannot support life.  The goals for the creation of this clinic are to increase awareness of these diseases and the variety of treatment options for these patients.

"These deformities are often silent sources of major distress for the growing child and teenager, as well as his or her family", says Sherif Emil, M.D., Director of Paediatric General Surgery at McGill and the Montreal Children's Hospital and the physician who envisioned the new Centre.  "Paediatricians and family doctors often dismiss the anomaly, believing that the only treatment is radical surgery.  However, in the last decade there has been a revolution in the treatment of these anomalies with many minimally invasive and less invasive options available", he adds.

The first one of its kind in Canada and one of few such centers in North America, the Chest Wall Anomaly Centre's multidisciplinary team is composed of pediatric general surgeons, orthopaedic surgeons, pulmonologists, pediatricians,  nurses, physiotherapists, medical imaging specialists, and orthotists, with additional services as needed offered by plastic surgeons, cardiologists, and geneticists.  According to Jean A. Ouellet, M.D., Deputy Chief of Staff at Shriners Hospitals for Children- Canada, "Our multidisciplinary team will develop a centre of excellence by concentrating all of our expertise in a one-stop centre for treatment diagnosis and evaluation. Becoming the referral centre in Canada, the accrued number of patients will allow us to maintain a high level of expertise."

The team aims to provide state-of-the-art care for the entire range of chest wall anomalies in a family-centered environment that aims to optimize patient comfort and satisfaction. New technologies such as the dynamic compression brace introduced by co-inventor Marcelo Martinez-Ferro, M.D., of Argentina at today's press conference will allow physicians to offer therapy for pectus deformities without surgery in many cases. In addition to fitting, adjusting and following up on patients' braces and surgery, the team will collect data on the various types of treatments in order to evaluate results and continue to improve care.

"We hope to treat between 40 and 100 patients per year. To refer a child to the Chest Wall Anomalies Clinic, paediatricians, physicians and families across Canada can contact Shriners Hospitals for Children - Canada at 1-800-361-7256", says Sharon Brissette, Director of Nursing and Patient Care Services at Shriners Hospitals for Children - Canada.

Often young patients tire of braces and, despite the pain and other disadvantages, opt for surgery. To help overcome lack of compliance to treatment, the team is working with the highly successful, non-invasive orthotic brace developed by the specialists in Argentina. It is anticipated that as other centres across Canada become aware of the integrated team and the advances made with braces, demand for treatment will grow. At that point, satellite centres will be established for periodic adjustment of the pressure of the braces.

In the case of 14-year-old Antoine Marcil, he noticed differences between himself and his classmates at gym class. At first his mother and father reassured him that they were just minor physical differences. As the symptoms increased, though, he and his parents began to fear a serious illness. He was informed that if the protrusion weren't cancerous, therapy existed to reduce it. Fortunately, following X-rays and other testing, he was reassured that the pectus carinatum was more of a cosmetic than a medical disorder.

Antoine says, "I was happy to find out that it wasn't cancer and that I'm not the only one with this condition."

Antoine has been measured for the Dynamic Compression System chest brace. He will be seen on a monthly basis to adjust the brace as the therapy progresses.  He is happy that it won't be very visible under his shirt and that he won't be uncomfortable wearing it.

After months of stress and anxiety, his parents are relieved that thanks to the Chest Wall Clinic their son will not have to undergo surgery.

"The support we have received from the Shriners Hospital and the entire team has been fabulous. The wait times have been kept to a minimum. The Shriners does not look like a hospital, no white coats and everyone is all smiles," says mother Marie-Josée Denis.

Bracing costs for pectus carinatum can reach $3,000, and remains significantly less expensive for the health care system than surgery.  Thus, bracing can provide excellent outcomes in a fiscally responsible manner.  As for all braces, Shriners Hospitals for Children - Canada currently fund the apparatus for families without supplemental insurance.

Located in Montreal, Shriners Hospitals for Children® - Canada is a bilingual, short term, acute care centre providing elective pediatric orthopaedic health care.  The role of the hospital is to promote health and to provide treatment and rehabilitation to children with orthopaedic and neuromuscular problems.  The hospital is committed to excellence and innovation in clinical practice, research and education and to providing a caring environment to families. The hospital is affiliated with McGill University and provides clinical experience and teaching for residents and allied professionals. The hospital is present in communities across Canada thanks to Telemedicine, Outreach Clinics and since January 2009, a Satellite Clinic in Winnipeg. Shriners Hospitals for Children -Canada has been helping kids defy the odds since its opening on February 18, 1925.

The Montreal Children's Hospital (MCH) is the pediatric teaching hospital of the McGill University Health Centre and is affiliated with McGill University. The MCH is a leader in providing a broad spectrum of highly specialized care to newborns, children, and adolescents from across Quebec. Our areas of medical expertise include programs in brain development/behaviour, cardiovascular sciences, critical care, medical genetics and oncology, tertiary medical and surgical services, and trauma care. Fully bilingual, the hospital also promotes multiculturalism and serves an increasingly diverse community in more than 50 languages. The Montreal Children's Hospital sets itself apart with its team approach to innovative patient care. Our health professionals and staff are dedicated to ensuring children and their families receive exceptional health care in a friendly and supportive environment.

Image with caption: " Jean. A. Ouellet M.D., FRCS, Orthopaedic surgeon, Deputy Chief of Staff, Shriners Hospitals for Children® - Canada (CNW Group/SHRINERS HOSPITAL FOR CHILDREN (CANADA))". Image available at: http://photos.newswire.ca/images/download/20110926_C6596_PHOTO_EN_3810.jpg

Image with caption: "Uncovering the myth of Chest Wall Deformities - Shriners Hospitals for Children® - Canada Montreal & Montreal Children's Hospital Open Joint Clinic (CNW Group/SHRINERS HOSPITAL FOR CHILDREN (CANADA))". Image available at: http://photos.newswire.ca/images/download/20110926_C6596_PHOTO_EN_3812.jpg

Image with caption: "Sherif Emil, M.D., Director, Division of Paediatric General Surgery, Montreal Children's Hospital of the McGill University Health Centre (CNW Group/SHRINERS HOSPITAL FOR CHILDREN (CANADA))". Image available at: http://photos.newswire.ca/images/download/20110926_C6596_PHOTO_EN_3814.jpg

Video with caption: "Video: Shriners Hospitals for Children® - Canada Montreal & Montreal Children’s Hospital Open Joint Clinic". Video available at: http://stream1.newswire.ca/cgi-bin/playback.cgi?file=20110926_C6596_VIDEO_EN_3817.mp4&posterurl=http://photos.newswire.ca/images/20110926_C6596_PHOTO_EN_3817.jpg&clientName=SHRINERS%20HOSPITAL%20FOR%20CHILDREN%20%28CANADA%29&caption=Video%3A%20Shriners%20Hospitals%20for%20Children%26%23174%3B%20%2D%20Canada%20Montreal%20%26%20Montreal%20Children%26%23146%3Bs%20Hospital%20Open%20Joint%20Clinic&title=SHRINERS%20HOSPITAL%20FOR%20CHILDREN%20%28CANADA%29%20%2D%20Uncovering%20the%20myth%20of

SOURCE SHRINERS HOSPITAL FOR CHILDREN (CANADA)

For further information:

Source:
Emmanuelle Rondeau
Interim Public Relations Manager
514-282-6990 / 514-207-1057
erondeau@shrinenet.org

Pamela Toman
Public Relations and Communications
The Montreal Children's Hospital (MCH) McGill University Health Centre
514-412-4307


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