CAMBRIDGE, MA and BASINGSTOKE, England , Feb. 28 /CNW/ - Shire plc (LSE:
SHP) (NASDAQ: SHPGY), the global specialty biopharmaceutical company,
today announced its support of World Rare Disease Day, joining
patients, physicians, and patient organizations around the world to
support a day that focuses attention on rare diseases as a public
health issue and highlights the need for more understanding and
awareness about these diseases.
To view the Multimedia News Release, please click:
World Rare Disease Day is coordinated at the international level by the
European Organisation for Rare Diseases (EURORDIS) and the National
Organization for Rare Disorders (NORD) in the US and aims to draw
attention to the gaps in healthcare that exist for rare disease
patients worldwide, and work to find global solutions.
It is estimated that there are between 5,000 and 8,000 known rare
diseases affecting around 250 million people in the world. As a leader
in the orphan disease space for over twenty years, Shire has focused
its work on researching, developing and marketing products for Fabry
disease, Hereditary Angioedema (HAE), Hunter syndrome, and Gaucher
disease, as well as building and investing in a pipeline of innovative
products and solutions to treat rare diseases.
"For many patients and their families, the journey to a diagnosis and
subsequent treatment for a rare disease can be a long, complicated
process," said Sylvie Gregoire, President of Shire HGT. "Shire is
committed to enabling people with life-altering conditions to lead
better lives - and for us, this includes improving access to
information as well as providing much-needed treatment for rare
diseases. We are proud to support World Rare Disease Day and hope that
this day can highlight the amazing people who encompass the rare
disease community, and their unique and important situation as a global
public health concern."
Shire's Global Rare Disease Day Initiatives include:
Extending BraveCommunity.com (http://www.bravecommunity.com/), its online resource center that aims to connect patients and to
provide important information about rare diseases.
Sponsoring the first 'STOP RARE' disease awareness event in Lausanne, as
well as the Symposium "Wissen Heilt!" held in Basel on February 26th.
For further information:
Jessica Cotrone (North America, HGT), +1-781-482-9538, email@example.com; Jessica Mann (Rest of the World), +44-1256-894-280, firstname.lastname@example.org